We had a fun halloween...Vandro's 1st, Eva's second!!! The week before Halloween we carved pumpkins with Jory (the little boy Jose mentors). Eva was the Frog Princess and Evandro the Frog Prince. Jose and I made Vandro's costume and reused Eva's tinkerbell costume from last year for her princess costume, it was fun. We totally are not crafty nor do we have sewing etc skills but maybe next year.
Tuesday, November 2, 2010
Halloween 2010
We had a fun halloween...Vandro's 1st, Eva's second!!! The week before Halloween we carved pumpkins with Jory (the little boy Jose mentors). Eva was the Frog Princess and Evandro the Frog Prince. Jose and I made Vandro's costume and reused Eva's tinkerbell costume from last year for her princess costume, it was fun. We totally are not crafty nor do we have sewing etc skills but maybe next year.
Wednesday, October 20, 2010
Ok...second video so cute Ahhh Vandro!!!!
Doesn't he just make you laugh!!
Wednesday, October 6, 2010
Creating Awareness - Families for HoPE
My Dear Family and Friends
As of recent, I became a board member for Families for HoPE. This is my opportunity for me to help create awareness for Eva’s condition, a condition that affects so many families; most statistics have been taken in the UK. However, currently, in the US the incidence is about 951 per year. Holoprosencephaly (HPE), is listed as a rare disease, this means that it affects less then 200,000 people in the US population.
Families for HoPE, Inc. is a 501(c)(3) nonprofit organization seeks to provide support for all stages in the HPE journey: Families of unborn infants receiving a diagnosis of HPE, Families of newborns diagnosed with HPE at birth, Families of infants with delay in diagnosis of HPE, Families of children with a diagnosis of HPE, Families of adults with a diagnosis of HPE as well as Families grieving the loss of a child with a diagnosis of HPE.
Starting today and until October 28, 2010, we are having our Fall Fundraiser. This fundraiser will help with upcoming conferences and future family weekend conferences and of course, to continue to create awareness about HPE, I need your help!!! I would love it if all of you bought a T-shirt or at the very least one of the Awareness Items.
Buying any of these items, I believe, with their message of HoPE, can be worn and applied to many situations. The HoPE motto is everyone’s motto – as in our family, we have seen our share of trials but -- as we stand HoPE prevails! Things can be tough and HoPE is the only thing that can separate us between surviving trials and falling into despair.
Thursday, July 8, 2010
Evandro Nicolás Peña
Welcome baby!!! Evandro Nicolás Peña was born on 6/21 at 6:58am, 8lbs, 12oz and 21 inches long!! I can not tell you how amazing it was to see him all red and gooey, he was real. Its funny for me being pregnant was some thing so separate and distinct to having the baby. Ok, I know it sounds weird, cause of course its separate and distinct! But I guess, being pregnant you have the things you love about it and just grow accustomed to and then when the baby is gone from your belly, you miss them there. You have fantasies about how that little baby is going to be, what they will look like and act like. When they are born, its a start over, they are who they are, they look as they look and it catches you off guard! When I saw Evandro, it was instant water works! He was real and beautiful and healthy! Eva looked the same to me when she was born, I guess that's why it was still a shock to hear her confirmed diagnosis two days later! With Evandro, I got to keep him in my room the whole time in the hospital. I could hold him as much as I wanted to!!! I held him tight for all the times I could not hold my sweet Eva while she was in the NICU and I as recovering.
Thursday, May 13, 2010
Mother's Day
Tuesday, May 11, 2010
Waiting
It was a little awkward this morning sitting in the registration area waiting to be called and seeing so many kids waiting for procedures, I was nervous and felt out of place. The kids, however, just played with the toys, not looking any where near as anxious as their parents. Eva's procedure is supposed to take 2 hours and its been about an hour already. I was so emotional handing her over to the anesthesiologist at the end of our walk down a long hallway to the surgery area. I could not squeeze her and kiss her enough! Maybe all mothers feel this way but as a mother I just want to be there for every single thing she goes through. I want to hold her hand, hold her, comfort her, even though she may not need comforting. As an aunt, most of my nephews and nieces will attest to this, I wasn't exactly the most nurturing of Tias. My nephew stated once to my sister, after he found out I was applying as a flight attended (I was about 24years old), "I don't think Tia Gabby would be a good flight attendant, she would make the people get all of their own blankets!" I demanded they do everything themselves, I was not there servant! When they cried I wasn't always the most compassionate either, I would kind of get annoyed that they cried over nothing and would pretty much just tell them to suck it up. I couldn't stand whining or lazy little kids. I guess that's what happens when you don't have kids until your 30's?! I've been an aunt since I was 10 years old so I guess I became pretty comfortable in that role.
But motherhood....oh boy, different ball game! I have come to see my brothers and sisters and there parenting styles in a completely different light. I have come to understand what real love and compassion is, what it means to comfort an innocent child in new and scary experiences. Although Eva is not old enough or maybe does not have the understanding of these things for me to put into real practice these new found traits, I just feel them because of being her mother. Before getting pregnant, before having children, Jose and I had all these theories of how we would parent and what things we would do regarding discipline etc.. not that we can apply things necessarily with Eva but once you see your baby, your child, this little piece of you and your husband something happens. You could never imagine hurting them, or seeing them hurt or sad, and you certainly could not imagine being the one that inflicts any of these things. I guess we'll have to wait and see if these feelings continue when we have to deal with a screaming, tantrum throwing child...LOL!!! We know that our son will probably give us a run for our money but we are definitely looking forward to finding out!
Theories are great and its so ideal to plan and believe that all your plans will just work out as you dream they will, but one thing I have learned as a new parent, as a new wife, is that the best plan is a flexible one!
Well, our time is almost up for Eva's procedure to be done, I think I'm going to quietly wait for my perfect little girl! I can't wait to hold her and kiss her again!
Wednesday, May 5, 2010
So many updates...but I'll start here!
Monday, February 22, 2010
Its a Boy!!!!
Thursday, February 11, 2010
Pictures of Youmna
Wednesday, February 10, 2010
Youmna
Wednesday, January 20, 2010
Our Eva's turning 1!!!
On January 28th Eva will be 1 year old! I can't believe that our little girl is turning 1! So many things run through my mind when I think back a year ago and all that transpired and how this day seemed a million years away. We will be celebrating Eva's birthday on January 30th. One year to that date, we received the most horrible confirming news, her MRI results came back and she also had her first seizure that morning, they told us "your daughter has Alobar Holoprosencephaly and she does not have very long to live". I can remember that day like it was yesterday. Just two days prior we welcomed our baby girl into the world and where so excited and caught up with the new parent feeling, when they confirmed her diagnosis, told us to take her home and make as much memories we could because she had such little time left. Those words, were mind blowing, Jose and I have never hurt so much. Getting to her 1st birthday seemed impossible! But here we are, celebrating her year of life and still taking things one day at a time.
Saturday, January 9, 2010
AT LAST
I just love the lyrics of the Etta James classic, "At Last":