Creating Awareness - Families for HoPE

My Dear Family and Friends

As of recent, I became a board member for Families for HoPE. This is my opportunity for me to help create awareness for Eva’s condition, a condition that affects so many families; most statistics have been taken in the UK. However, currently, in the US the incidence is about 951 per year. Holoprosencephaly (HPE), is listed as a rare disease, this means that it affects less then 200,000 people in the US population.

Families for HoPE, Inc. is a 501(c)(3) nonprofit organization seeks to provide support for all stages in the HPE journey: Families of unborn infants receiving a diagnosis of HPE, Families of newborns diagnosed with HPE at birth, Families of infants with delay in diagnosis of HPE, Families of children with a diagnosis of HPE, Families of adults with a diagnosis of HPE as well as Families grieving the loss of a child with a diagnosis of HPE.

Starting today and until October 28, 2010, we are having our Fall Fundraiser. This fundraiser will help with upcoming conferences and future family weekend conferences and of course, to continue to create awareness about HPE, I need your help!!! I would love it if all of you bought a T-shirt or at the very least one of the Awareness Items.

Buying any of these items, I believe, with their message of HoPE, can be worn and applied to many situations. The HoPE motto is everyone’s motto – as in our family, we have seen our share of trials but -- as we stand HoPE prevails! Things can be tough and HoPE is the only thing that can separate us between surviving trials and falling into despair.

I need your help; we need your help to create awareness for Holoprosencephaly! This is a condition with no cure. The formation of the brain of an unborn child starts within the first few weeks of life, hence where the malformation starts. The earliest some parents can find out about the condition is about 15 weeks gestation --- however that is still too late! Help us create awareness among our friends, family, health professionals and health communities! These little babies that are given this diagnosis deserve life, not all children fall to the fatal diagnosis that physicians explain to parents. These little babies, children and adults need more community support from their health professionals.

Please let me know what items you are interested in buying, I can put in your order and you can send me payment (check or money order) all items must be paid in full no later than October 28^th. You can make your checks out to Families for HoPE, Inc. or you can make them out to me. Also with your order, please note that there is shipping costs as follows: 1-4 items: $5, 5-10 items: $10, 11-15 items: $15, 15+ items: $20 added to your order. There is also a credit card option via the www.familiesforhope.org website, you have to click on the donate button, follow instructions to complete payment.

Thank you all for your support I would love if you could help me spread this email and continue to help me create awareness! Help me raise money, money, money, money...LOL!!!

I love you all!!!