The last few months have been a blur, Jose is now done with school for the summer and for once taking a long deserved break. He will hold off from taking the MCAT and applying for medical school this summer in order to focus more on us and on him. He seems really happy with his decision and that makes me happy with his decision. Eva has continued to have eating issues, we just have not been able to get the throwing up under control, we blame the seizures, acid reflux but really we know that due to her condition there will always be something. I have stated in past posts that, I don't want to fix my daughter, but I would love to make her comfortable. She is such a brave girl who teaches all of us every day. Eva is still weighing only 11lbs and quite small, she is about 26 inches...but the cutest little princess you will ever see!
Just this last week we went to see the pediatric surgeon to talk about Eva's options for g-tube, a g-tube or a gastric (another word for stomach) feeding tube is a tube inserted through a small incision in the abdomen into the stomach and is used for long-term feeding. While we visited with the doctor he suggested that she get a Nissen fundoplication as well. The Nissen fundoplication is basically an extra step to ensure Eva will not throw up, what it does is improves the natural barrier between the stomach and the esophagus by wrapping a part of the stomach known as the gastric fundus around the lower esophagus. It will prevent the flow of acids from the stomach into the esophagus and strengthens the valve between the esophagus and stomach. We have scheduled the surgery for this upcoming Tuesday, May 11th at Primary Children's Hospital in Salt Lake City. It is supposed to be a very routine and simple surgery (for the surgeon...lol), it will be done laparoscopically, which is by a very tiny incision to accommodate small tubes, a passageway for special surgical instruments and a laparoscope. A laparoscope is a fiber-optic instrument that is inserted in the abdominal wall, it sends images from the stomach to a video monitor, so the surgeon can operate with those special surgical instruments. Ok that was a basic explanation but as sophisticated as I get! As of today, we scheduled Eva to have the g-tube with the Nissen fundoplication but Jose and I have felt that we need to pray and make sure that it is still the right decision for her. Our surgeon was extremely reasonable in letting us schedule while we are still deciding on the lengthier part of the procedure. We have until the day of surgery to change our minds and only have the g-tube done. I know that makes me feel more in control. There is no fear like the one a parent feels to hand their child over to someone else, and just trust that they will make the best decisions from there on out. We feel really comfortable with our surgeon and his staff, the hospital seems great and those things really aid in comforting us. I know that the hand of the Lord is very much present because the fear that I have comes from my own brain, He is there to wrap His loving arms around Jose and I in reassurance that His plan is in full effect and no matter what happens He will always be there to comfort and love. I guess it makes me feel like Eva will never be alone, even though I won't be with her in surgery, its funny though, she is soooo much stronger than I could be. I look at that baby and she has no fear! She is the reason I guess I can't!
Well, since my last post I have also found out I have gestational diabetes. Boy does it bite to have a restriction of diet when you crave all the wrong things, I am forced to practice discipline, a lesson I have greatly needed. So we are back seeing the perinatologist, I am getting weekly non-stress tests to check on the baby. They basically hook me up to a monitor and monitor for contractions, baby movement, heart rate etc... I just lay there for about an hour and get to listen to our son! Its not cool to go to the doctor every week but its so wonderful and soothing to be able to hear our baby! I also am getting monthly ultrasounds. My sugars are doing pretty good, I have some bad readings but they are not bad by much, and I usually know exactly why! I do know, however, that once you have had gestational diabetes the chance of getting it in subsequent pregnancies is pretty darn high, as well as getting it later in life. Healthy eating habits and exercise are not only essential but life saving! Well, I know that I have been steadily gaining weight (and being pregnant for two years doesn't help) but this has certainly been an eye opener. Of the four risk factors I meet all four, being older than 30 (some sites say 25 years), family history, being overweight (which kills me, cause if you knew me from before I was always very thin, with no effort), and Race - Hispanic!
Well, I can't really complain about any part of our situation, there are too many blessings around to do that! This post is quite long and I have still so many other amazing things to talk about. I'll have to post that a little later...but we did have wonderful baby shower in Tucson for our son and it was amazing and fun! Eva's hair is growing like a weed! I am as big as a house! All these pictures I have to post, soon I promise. Today is the beginning of my Mother's Day weekend and I have to go, I woke up to the most amazing little surprises and we are on our way to the Tulip Festival (my favorite flower), lunch (Brazilian...hmm meat!) and then our ward Mother's Day party and dance (Salsa, Merengue, Bachata...we'll see if I have any moves in me!)
Have a great Mother's Day weekend!!!
Los Peña
3 comments:
So wonderful to hear how things are going!!! And how exciting to have your little guy coming so soon!!! So excited for you guys, and glad to hear that Eva is doing pretty well. You are an amazing mother and what a blessing to share the journey with so many!!!
let me know how Eva's surgery goes! miss you!
I don't know if you decided to do the Nissen fundoplication or not but I just wanted to let you know we had it done for our baby with Hydrocephalus and other neurological problems when she was 5 1/2 months old and it was the best thing we could have ever done for our child. It actually helped with her seizures too. She was in so much pain from the acid reflux her mind couldn't handle it and it was causing her to have seizures. If I had known what a huge difference it was going to make in our lives I would have had it done when she was only 3 weeks old. I had to fight to get the doctors to even do it at 5 months because they kept telling me she would grow out of it. Our surgeon was Dr. Barnhart and he was/is amazing and let us make whatever decisions we wanted. We opted out of a G-tube because Georgia is a great eater. Her GI doctor was pushing us to get it but we didn't feel right about it because Georgia doesn't have eating problems. I hope the surgery went well for you and that little Eva is recovering nicely. We were amazed at how quickly the laproscopic surgery healed as opposed to open surgery. The people at Primary Childrens are amazing. Hang in there.
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