Wednesday, October 20, 2010
Ok...second video so cute Ahhh Vandro!!!!
Doesn't he just make you laugh!!
Wednesday, October 6, 2010
Creating Awareness - Families for HoPE
My Dear Family and Friends
As of recent, I became a board member for Families for HoPE. This is my opportunity for me to help create awareness for Eva’s condition, a condition that affects so many families; most statistics have been taken in the UK. However, currently, in the US the incidence is about 951 per year. Holoprosencephaly (HPE), is listed as a rare disease, this means that it affects less then 200,000 people in the US population.
Families for HoPE, Inc. is a 501(c)(3) nonprofit organization seeks to provide support for all stages in the HPE journey: Families of unborn infants receiving a diagnosis of HPE, Families of newborns diagnosed with HPE at birth, Families of infants with delay in diagnosis of HPE, Families of children with a diagnosis of HPE, Families of adults with a diagnosis of HPE as well as Families grieving the loss of a child with a diagnosis of HPE.
Starting today and until October 28, 2010, we are having our Fall Fundraiser. This fundraiser will help with upcoming conferences and future family weekend conferences and of course, to continue to create awareness about HPE, I need your help!!! I would love it if all of you bought a T-shirt or at the very least one of the Awareness Items.
Buying any of these items, I believe, with their message of HoPE, can be worn and applied to many situations. The HoPE motto is everyone’s motto – as in our family, we have seen our share of trials but -- as we stand HoPE prevails! Things can be tough and HoPE is the only thing that can separate us between surviving trials and falling into despair.